Category Archives: Running

Nearly 2 months

It’s been a long time since I posted. I know. And it’s been a nice break, I suppose, but the wheels start turning again, and I have stuff to share, if you care to listen.

For starters, I left off talking about the memoir I’m writing. Progress is not at a complete halt, but it’s really slow going. I’ll get there, I’m sure of it. I’ve been focused on a lot of things that are happening now, so that detracts from the writing about the past. It was tax season for awhile there, so I had a lot of tasks to complete for the church. Getting W2s and 1099s out, filing them with the appropriate agencies, that sort of thing.

I’ve also been fully immersed in my daughter’s involvement with Girl Scouts, including some meeting planning and selling cookies. Being a part of this troop gives her a number of opportunities to reach out of her comfort zone and discover what she’s really capable of. When she does, she oozes with pride and I am one proud momma for sure. My son stays busy with wrestling and he always works hard and is continuously improving, and that also makes me proud. We try really hard to raise good kids but we can’t take credit for most of what they do well. We just stand back amazed and thank God, praying that we don’t screw it up.

I’ve been running a little bit. I joined a free good form walking/running class with a friend of mine, so two afternoons every week we get to learn how to walk and run properly so that we don’t injure ourselves. In four weeks, when the class ends, we’ll all participate in a 5k race together. It’s been a lot of fun mingling with other like-minded people and I’m learning a lot. I hadn’t realized I had sort of lost some of the joy of running but this class is helping me to rekindle it.

My fatigue level was pretty high there for awhile following the holidays but it’s getting a lot better. I have no doubt the regular running is helping. I’m still quite tired a lot of the time, meaning that I’m sleeping a lot more, but it’s manageable. It’s hard to explain the difference between fatigue and being tired. I guess I only know the difference because when I’m fatigued, I’m not yawning or wanting to sleep. I just can’t seem to move my body. My legs are heavier and walking up the stairs takes considerable effort, but I don’t feel like I could sleep. When I’m fatigued, my mind is often still very active, so I sit a lot and think about what needs to be done, and strategize how to get it done in the most efficient way. So I guess it’s not all bad. You’ve gotta look at the bright side, or the clouds will consume you.

One of the things I’ve been doing a lot more of is crocheting, because that’s something that doesn’t require a lot of thought or energy, so it’s the perfect activity for when I’m fatigued. I’m finishing up an afghan for one of my nephews, and when I’m done I’ll start on one for the next niece or nephew. I have 14 nieces and nephews, so I’ll be at this for many years to come. The plan is to complete them while they’re still in school. I’ve done six so far so I’m not even halfway through. It’s been a lot of fun so far and I just hope the ones who have received their blankets are enjoying them.

I’m starting another Financial Peace class a week from tomorrow, and I’m pretty excited about it. I only have 3 registrations, but two of them are people I met through Bible Study Fellowship, so I’m hopeful they will work the plan and stay for the full 9 weeks. It’s always exciting to watch people go through this class and to see what kinds of things change in their thinking and their habits. A lot of people believe you can’t live without credit cards or a high FICO score or a car payment, and to watch them as they learn the truth of a better way, God’s way, of handling their finances is truly inspiring. I always come away from every week of class motivated to keep on working the plan in our own home, and teaching the principles to our children. I don’t mind doing the class for only 3 members (at least 2 are married couples) but discussion is much more dynamic when you have more, so I’m praying we get more people signed up. We shall see.

I hope you all are having a good year so far. I’ll try to post more regularly to keep you posted on what’s happening in my itty bitty world.

Going back in order to move on

Okay guys. I have intentionally not been blogging because it was winter break and I wanted to be more present and “in the moment” as I spent time with my families over the Christmas and New Year festivities. That mission accomplished, I’m moving on to the next big goal.

I had previously said (maybe not here, maybe just in person to other people) that I was going to run a full marathon in the fall of 2020. But while I contemplated all the training necessary for such an endeavor, I realized I had another big goal I was wanting to accomplish this year. I want to finish writing my memoir. This is very important to me, as I’ve got a lot of stuff to say about my dramatic entrance into this life of disability that I feel God is calling me to share. So I decided I can’t focus properly on both at the same time, and I had to pick which one to work towards first. I’m choosing to write.

I had started writing the memoir a long time ago. I was able to write about what happened, but after 6 or 7000 words I was stuck. And the real problem is that the facts of what happened is only the tip of the iceberg. I need to write about how I felt at each turn, and how we all coped. I need to get real and raw. So even though I’m up way past my bedtime, I made a point to just sit and at least spend 20 minutes writing something. I just started writing, and I didn’t bother with editing or proofing as I went. And here it’s an hour later and I’ve written something, but also I’m in tears. Because I am revisiting some of my darkest, most heartbreaking days. I understand now why I was procrastinating on this. Because I almost have to relive the pain in order to share with others how I made it through. I need to go back to that place if I want my readers to go there with me.

This is going to be really effing hard, folks. Please pray for me, that God would continue to give me courage to rip open these wounds in order to write these words. These words that only He can give me. Because He has called me to share my story, and it is my understanding that He equips those whom He calls.

Focus

Did I mention I went to see a low vision specialist a couple weeks ago? My neuro-ophthalmologist had recommended it, since my vision has remained stable over the past six years. I’m not sure why he waited so long to suggest it, because I could have used the help a lot sooner, but that doesn’t matter. Better late than never.

So I went to see this low vision specialist, Dr. Putnam, and I learned a lot. I learned that what I’ve been doing up to this point to manage my low vision has been helpful, in that I’ve adapted. However, I also learned that in many areas rather than adapt, I avoid. Take using cash, for example. It takes so long to figure out what denomination a bill is, or what type of coin I’m holding, that I just use my debit card for everything. Or if cash is my only option, I’ll ask one of my children to get the cash for me. Who knows how many other things I’ve come to avoid because they are too difficult?

The biggest thing I’ve avoided is driving. I’ve never actually had a doctor tell me I couldn’t. I just don’t because I assumed I can’t because I have low vision. When it was time to renew my license, rather than taking the required test, I opted for the state identification card instead. When doctors ask me if I drive, I chuckle. Because to me it seems so obvious that I CANNOT drive. So when this low vision doctor asked me if I drive, I reacted the same as always. I chuckled and said “No, that would be impossible.” Her response surprised me. Now this doctor has seen my visual field tests. She knows very clearly what I can and cannot see. And yet she said to me, “Don’t say it’s impossible. I don’t want you to get your hopes up too high, but I also don’t want you to count it out. There’s a lot we can do. Even if it’s restricted driving, it may be something that’s an option for you.”

This idea floored me, and I haven’t stopped thinking about it since. I’ve lost about 60% of my field of vision, but the other 40% is clear, as long as I’m wearing my glasses. Is 40% enough to safely drive a car? Dr. Putnam seems to think it could be, or it’s at least enough to warrant exploring the idea.

Speaking of my glasses, a year and a half ago, I bought a new pair with the recommended progressive lenses. The low vision doctor believed that the progressive lenses were not helping me, but were actually hurting me. The way they work, I guess they kind of block out or distort a good portion of that 40% where my eyes can actually see. Which would explain why I had secretly felt extra blind for awhile. I just figured that was the way it was going to be, and I just moved on. But now I have these new lenses, with an updated prescription, and without the progressive lenses. And let me tell you, there is a remarkable difference. It was a little strange the first day wearing them, but now that my brain has adjusted to them I can tell you I see so much better. Not close up of course, but that’s okay because I’m nearsighted. Seeing far away is greatly improved, and that has me thinking again about what Dr. Putnam said to me about driving.

My husband asked me about this today, the idea of me driving again, and I had to be honest, it scares the crap out of me. BUT – I’m trying to open my mind up to the possibility, just like Dr. Putnam encouraged me to do. I’m trying to ditch my all-or-nothing thinking here. Digging up the idea of me driving that I had successfully grieved and buried in its grave. It’s a big idea. Scary too. But I changed my mind once about this, I can change it back. It’s just going to take some time. We are deciding to reopen the chapter on this aspect of my disability and give it more thought and prayer.

So that is the exciting news around here. We have lots of other things going on but I won’t bore you today with the details. In addition to family and kid stuff I’m remaining semi-focused on running and writing, but that’s probably another blog post of its own. Stay tuned, I’ll try to be back at least once before Christmas. Happy Wednesday and peace to you, my friends.

Reading and Running

Lately, I haven’t had anything very inspirational I’ve felt like writing. So I just haven’t been writing. For fear of boring you with all the details of my day to day. But the alternative to writing the mundane hodgepodge is to not write at all, and that’s maybe not great either. Because as I learned in a recent audio book I just finished “reading” (The Shallows, by Nicholas Carr, if you love science!), your brain is like a muscle. If you don’t use parts of it, they shrink and it becomes harder to access them down the road. So I’m exercising my writing muscle by writing even when I don’t have anything to write about. And as I’m writing, I’m sure something will come to mind. That’s always how it seems to work, anyway.

I’ve really been craving dark chocolate. I don’t know why I never keep any around the house.

I have not been running these past couple of weeks. I think after the bout of fatigue following Thanksgiving, I sort of fell out of the habit. I’m hoping to get back into it this weekend though. If the weather cooperates, of course. Treadmill running still sucks.

BUT! I do want to tell you how the Turkey Trot 5k went, but I want to be careful not to toot my own horn too loudly. So you know I was training, sort of, trying to increase my speed, and was hoping to beat my previous PR of 38:24. But even if I didn’t beat my PR, this was a memorable race. I ran it with my son, who is much faster than I am. I wished him luck and left him at the head of the pack with all the seriously fast runners, and scooted back as far as I could because I knew otherwise I would get trampled when the race started. This race was huge. I think the final count was around 5000 people. Maybe not large by other people’s standards, but it was by far the biggest 5k I had ever run. So with that many people the energy was pretty awesome.

The gun went off and I started running, and people immediately started zooming past me. I would have moved to the side to get out of the way, but I was so worried about tripping I stayed in the middle of the road where I knew there would be fewer potholes and cracks. Did I mention this was the first race I have ever run solo? No guide runners, no sign on my back to alert people that I was a deaf/blind runner. I had this sort of overwhelming sense – throughout the race – that I belonged there. That I was a real runner just like the rest of them. Note that I had not realized until this moment that I ever felt like I wasn’t one of them. So this was a brand new revelation, and I believe it is what propelled me forward, as fast as my feet would let me.

I was getting periodic updates from Runkeeper to tell me of my current speed, but I wasn’t paying attention enough to calculate what my average was looking like. I was just trying to enjoy the moment. So when I reached the finish and saw that my time was just coming up on 34 minutes, I was flabbergasted. My finish time was 34:03 – a full four minutes and 21 seconds faster than my last PR in May. I still don’t even understand how that is humanly possible. Not for me, at least, a woman with M.S. And certainly not in that short of a time period.

I’m still in a mild state of disbelief over the whole thing, but I’m now finally able to process it a bit more. I think the difference for that race, and my speed training on the treadmill leading up to it, is that I dared to run a pace that was just a bit past my comfort zone. Then when that felt comfortable, I pushed a little harder. So if I can just remember to push myself a little bit each time I’m out there, push the envelope so to speak, I know I can complete a full marathon next year, which is my next big running goal. I just have to be careful to be wise about it, and not push myself too hard or too fast. Know my limits, listen to my body and rest when it needs rest. I’ve learned so much this year about my capabilities, both mentally and physically, that I feel ready for this next step.

So I guess this post ended up being mostly about running. Sorry, not sorry. What else? Christmas is coming! I’m not ready, but who ever is? I’ll be ready when I need to be. I’ve been keeping busy with Bible Study Fellowship, bookkeeping for the church, and taking care of the home. Sadly the home sometimes takes a backseat to the other stuff but I’m working on fixing that. In my down time, my relaxing time, I’m doing a lot of crocheting and reading. I have a growing list of books I’ve started reading but couldn’t finish before the library’s digital copy expired, so I’m one by one working through knocking those off the Goodreads list. Not to say that like it’s a chore or anything. I still love my books.

That’s all for now folks! Tell me, what’s your favorite book to read over the holiday season?

Running With Dogs

I’m seriously not trying to draw pictures when I run, but this map looks like the profile of a dog. Do you see it? The pointy little ears and turned up nose?


But! What’s even cooler is that this was my fastest 3 miles, and that was even while running with Piper for the first mile. I’ve been secretly hoping to run a PR at the Turkey Trot on Thursday and I’m starting to really believe it’s possible! My current 5k PR is 38:24 and I would LOVE to come in under that and then go home and chow down on Grandma’s homemade stuffing and corn casserole.

What are you doing for Thanksgiving?

Busy day, busy week

I told a friend the other day, “I don’t know how you people do it!” And by “you people”, I mean those who do lots of things, all in succession, repeatedly over time. Because dang. I am managing, it’s fine, but I lived in my warm cocoon of permanent disability for so long I almost forgot what it was like to have a full schedule. Like normal people.

I’m still permanently disabled, of course, but my new energy levels allow me to do considerably more, and I’m just now feeling like I’m getting the hang of it. Although I have been feeling lately that my fatigue is trying to creep back in and I am almost certain it’s because I haven’t been running. I plan to rectify that situation soon.

Today is an especially busy day because I had a dentist appointment this morning to get a crown set up, and this afternoon I have my regular infusion for my MS medication. It’s noon and my face is still half numb from the dental procedure this morning so it was very strange eating my lunch. I’m tempted to get a second cup of coffee but if I do I’ll have to do drink it through a straw. I’m kind of looking forward to the infusion because it will be a forced opportunity to take a nap. Not that I ever need forcing, of course. Naps are the bomb diggity.

My daughter turned 10 on Tuesday (yay for double digits!) and she is having a few friends over Friday night for a sleepover so I’ll be spending the day tomorrow doing some catch up cleaning and preparing the food for dinner. She chose tacos even after my multiple suggestions for ordering pizza, so I guess I’m cooking. Anything for my birthday girl. We all love tacos, so it’s cool. Before dinner though, we’re taking the girls to Playing Picasso so they can do some pottery painting. Then we’ll go back home and eat tacos, then send the girls in the basement so they can watch Harry Potter and be their silly selves without judgment from big brother. Birthdays are fun, don’t you think?

I’m hoping to catch up more on writing in the next few days, to tell you about what I heard God speaking to me at the abbey last weekend, and maybe some other random musings about that habits I’m hoping to hone (like writing). Growth and change, but all good stuff going on here.

Cautiously optimistic

https://multiplesclerosis.net/living-with-ms/differences-after-ten-year-mark/?utm_source=facebook.com&utm_medium=promoted&utm_campaign=Aubagio-CAS&utm_confid=soviec04u

This article came through on my Facebook feed yesterday and I found it interesting because this week marks 10 years since my MS diagnosis. I may be off a little on the date but I’m almost certain it was early October. It was a month or so before my daughter was born, which was 11/05/09. So, close enough.

Anyway, I find it helpful sometimes to reflect on how my mindset has changed, whether it’s better or worse, or both. Most of the time these days, it’s better.

Ten years ago I saw myself certainly being wheelchair bound by now, or at least very heavily reliant on my walker. But instead I find myself fully mobile. I have stored away a walker and 3 canes that are for sure covered in dust by now. My husband and I have talked about getting rid of them altogether, because it’s been so long since I’ve needed them. I am not quite sure I’m ready to take that step.

See, if I’m being completely honest, that suggestion frightens me. Yes, I’m doing well and I’m running races, but the nerve damage is still there, and this article reminds me of that sobering fact. I can run all I want, eat all the vegetables my heart desires, but I can’t heal the scarring that has been done to my nervous system. Only God can do that.

I want to live courageously, without fear of the future, because it’s so much better than living in fear, which is where I was 10 years ago. Heck, even 6 year ago I was there, stuck in fear mode. My body and brain were shutting down on me as a coping mechanism. But that is no way to live, and I am fairly confident those days are behind me.

As I’m sitting here writing I’m gaining courage to let go, so pictured below I present to you my canes. From left to right: The gray cane is folded for easy transport, The 2nd cane was actually my first cane following diagnosis and has ladybug stickers on it that I applied myself (Bug was my nickname through high school and many years beyond), and the last cane is covered in a paisley pattern, because I love paisley. The walker is buried in the basement and not worth retrieving for this photo, but I’ll tell you I put flame auto decals on it and named it Speedy. So you know it’s cool.

I don’t know about getting rid of the walking aids. There is still a quiet voice back there whispering “what if?” and they do hold memories for me. However, they are not very joyful memories, so Marie Kondo would encourage me to let them go. Maybe I’ll just keep the paisley cane, because it’s just so pretty. It does spark a teensy bit of joy. 😁

No, I’m still undecided. I’m going to go for a quick run and see if I can make up my mind!