Category Archives: Friends

Lazy Sunday afternoon

Lazy Sunday afternoon… I feel like that’s a song lyric but I can’t seem to place it with any memorable melody. Oh well.

I finally have my computer back, as of last night. I ended up restoring it to the factory defaults, which took a good day and a half. Then I had to restore all my files, which took another day. So while it felt like FOREVER it wasn’t so bad. And I’m pretty sure I have everything back. This computer is not that old so it shouldn’t be having so many issues, in my opinion, but I am glad to have my backup so I don’t lose my photos and documents. Technology is amazing, when it works.

And it is working, that’s for sure. I was able to scan my Bible study notes, so I can get caught up on my lesson homework for this week. We are studying the book of Romans, which is an amazing book. Lots of practical truth in there with a good dose of conviction, grace, and humility. I’m loving it.

Yesterday I ran the 2017 Hot Cider Hustle 5k with some awesome ladies. I had not trained for it so I had some really low expectations going in. Then when the forecast showed rain for the day, my expectations dropped to another level. My new goal was twofold, finish before sundown, and have fun. My chip time was 43:45, which I don’t think was too bad considering the lack of training and the rain. I think my 5k times have usually been around 38 or so. I have to give a shout out to my sister who came and ran not only a PR, but placed 1st in her age group! Last year it was my brother placing 1st in his age group. I think that is some kind of weird and awesome tradition.

When I ran this race last year I had so much trouble with the route, so I wasn’t going to run it again. But then I saw that they changed the location altogether, with a much safer looking route, so I couldn’t resist (I’m totally in it for the swag – hoodies, coffee mugs, hot cider) and it’s just a fun race so I hope to be able to run it every year.

We became official members of our church today. We’ve been attending there for well over a year and just hadn’t really gotten around to it. But things finally did slow down and we were able to make it happen. We love this church. Everyone there has been so welcoming and genuine – both with their personal faith and with their hang-ups – that we feel like it’s a great place to have some healthy encouragement and accountability as we work to become better followers of Christ. That and they have free coffee ūüėČ

This concludes my lazy Sunday update. I hope everyone is hanging in there. HUGS!!

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I’m a crier…

I know, I know, I went a full month without blogging. Life just gets so busy in the summer, and I’m so busy trying to be “present” that I rarely get the time or mental energy to sit down and talk about what’s going on. And now that I do, I really don’t know where to start. So I’m just going to start with today.

Today I was scheduled to have my monthly Tysabri infusion for MS. I’ve been bringing my daughter with me to these infusions while school is out, and today was no different. Except that it was, because the infusion center had moved to a new building, and today was our first visit there. I was informed upon arrival – after being dropped off by the Spec-Tran – that I could not bring my daughter back with me, per a new policy. I immediately freaked, wondering what I was going to do. Do I let her sit alone in a waiting room for the three hours, do I cancel the appointment and call Spec-Tran to see if they could come back to get us, or do I text someone who may be able to help. I ended up texting a friend, and she was able to pick her up. But she had plans that i didn’t want to disrupt, so I eventually texted my father-in-law to arrange a transfer, and also to have him pick me up when I was done, and take us both home.

After my friend had picked up my daughter, I went back up to the infusion center to finish getting checked in. The nurse who took me back, Nell, asked me how I was doing today and, since she was a familiar face and had asked the question, I of course broke into tears. Because that’s what I do. When I’m happy, sad, scared, mad, whatever, I cry. And Nell, bless her heart, told me to just let it out. So I did. And then the heat started to leave my bones and I was able to breathe. They checked my blood pressure and it was normal, believe it or not.

All said and done, everything was fine. My daughter was fine. She was safe and with people I would trust with my life. I got my medicine – even got the IV in on the first try without much spazzing in my vein – and it was fine. A really effing frustrating day, but it was all fine. And the Tigers had a rain delay so I’m actually able to relax at home on my comfy couch with my chocolate peanut butter non-dairy ice cream and watch the Tigers play.

That’s all for now, but I do want to share all the other exciting stuff that’s been going on. Trips the kids and I have taken, foods I’ve been enjoying (and some not so much), the books I’m reading, movies I’ve been watching, stuff like that. And I will, I promise. Not today, but soon. Right now, ice cream and baseball.

In sickness and in health…

You know, I try really hard to be as healthy as I can. I can’t undo the damage MS has already done to my nerves, but I can do the best with what I’ve got left and the body I’ve got now. I stopped eating meat back in November. It’s gone well, so I gave up dairy last week. Right after I cheated a few days eating meat. And then I got sick with some nasty chest congestion. Ugh. The cheating was certainly not worth it.

Then today, I’m having coffee with a friend and BAM! I started having an attack of vertigo. It was so weird, y’all, I mean I have experienced dizziness but this was so much more. I mean, everything around me seemed to be literally turning. And it lasted for a good two minutes before it calmed down. The problem was that the feeling never really went entirely away, even long after my friend had left. I texted another friend to see if what I was experiencing was normal, and if I should go the urgent care or something. I was still feeling super dizzy and I was having some numbness in my left arm. But as I was texting with her I realized that yes, I probably should go. So I called my husband to come get me. My knight in shining armor dropped everything and came as quick as he could. In the meantime my friend came over to check on me and keep an eye on my kids while my husband and I were at the urgent care.

Thankfully, all my vitals and an EKG were normal. The doctor explained that it was most likely inflammation from my recent chest cold that got transferred and consequently trapped in my ear drum, and that it should clear up if I just give it time. In the meantime he gave me an anti-nausea medication to take in case the dizziness is really bothering me or making me feel unsafe. The medicine has helped tremendously.

I was just so ecstatic that I wasn’t having a heart attack and that I didn’t end up in the hospital because I have a family reunion to go to this weekend that I am SUPER STOKED about. Because I have an amazing family full of aunts and uncles and cousins and cousins-plus whom I never get to see anymore. I was so afraid that my stupid health issues were going to ruin that, so I’m just happy. Happy, happy, happy.

I did tell my husband – who knows how hard I try to be low maintenance, and loves me despite my utter failure at it – that I’m ready to get back to the “in health” part of our marriage vows. Seriously.

Hot Mess

85 degree summer heat.

Baseball tournament.

M.S.

Tingly hands debut.

Nerve pain.

Broken A/C freak out.

Sunburn won’t let me cool down.

Feeling helpless.

How does this not bother everyone else the way it does me?

What is wrong with me?

Oh yeah…. M.S.

Crying in the shower, snot running down the drain.

A good night’s sleep tried to help.

Literally dragged my foot to the bathroom the next morning (I did say “tried”).

I sat and waited in the physical therapy office for a half hour before checking in with the receptionist to see what the hold-up was. She was quite obviously unaware of the time of day, and had forgotten to let the therapist know I had arrived. It goes on from there, my bad luck, but I’m tired of hashing it out, those dumb details, so I’ll attempt brevity. I missed my ride, they tried to get me a new one, but I took a ride from a friend instead. Because I didn’t want to risk unleashing my emotions on a complete stranger. I came really close to doing that already at the therapist’s office, after discovering I had missed my originally scheduled ride. My husband reassured me that this was just a minor bump in the road, which I should have already known of course, but he knew I needed to hear it (He still amazes me, coming up with the right thing to say).

This was not my typical Monday. I don’t usually have to be anywhere, or talk to anyone but my family. So it was hard to do in the wake of a rough-on-me weekend. I just didn’t have the tools necessary to cope with minor hiccups like delayed appointments and missed rides. I spouted my frustration on Facebook and received lots of encouragement in return, but I felt a little shameful doing it. Because I like to be the positive one. I guess today I just decided it wasn’t worth the effort. Because it was going to take a lot of effort.

But those positive words helped, and the ride from a friend, and then a good nap in my own bed (with working air conditioning!). The kids were with grandpa for most of the day so my only interruption was the dog barking at who knows what. It was nice. And then I grabbed a beer, turned on some Led Zeppelin, and started chopping vegetables for dinner. I managed to relax. Truly relax.

I have more doctors to see this week and then I start some physical therapy next week. I’d bore you with the physical therapy details if I could remember them. So you’re in luck, cuz I have a terrible memory.

Peace out, readers. I hope you take some time this week to relax. Really, truly relax. It can only do you good.

 

Might as well call it the May Update…

Last month I published ONE blog post, and as it’s already the 10th of May, I guess I’m off to another slow start. Lest you think my silence is a bad sign, I’m poking my head out to let you know all is well. To prove it, I will now proceed with semi-coherent ranting about what I’ve been up to. What fun, yes??

So last Friday we ran another 5k race, my son and I. He absolutely killed his time from the year before, but since he had not really been training for it his recovery was pretty rough. He’s feeling better now, but the weekend he was in rare form, complaining of sore legs, not wanting to move around. I hadn’t done a lot of training either, and my finish time reflected that, but my legs felt okay after so I’m not sorry. I stayed on my feet the entire time and that’s my one true goal when I run, so I’m happy. My daughter ran the one mile race that’s not timed, and her goal was to finish, and girl, did she finish. She cramped up a little towards the end, but she was determined to not give up, and we are super proud of her for that. Both my kids are serious fighters.

I’ve been filling my weeks judiciously with shopping trips with friends, playing fetch with the dog, and going to various doctor appointments. I saw a dermatologist (Did I blog about that? I seem to remember) and discovered I do not have acne, but rosacea. Which was still possibly triggered by my round of steroids, but treated much differently. I’m also seeing my primary doctor soon in regards to what I’m calling “significant” joint pain in my right hip and knee. I suspect it’s just my osteoarthritis acting up and hoping it’s nothing more serious. We shall see.

I decided back in November to stop eating meat. It’s going fairly well, and I do feel better.¬†I still eat some fish and some beef (the ground beef we buy from a local farmer) but only when other options aren’t readily available. I don’t have a great explanation for the change, other than the fact that I really, really love vegetables and grains and I’m disgusted by what I’ve read about the way meat is processed in this country. So my appetite for foods I used to love is pretty much gone. Like last night, I made chili dogs for the family and I totally thought I was going to eat one too. But then I just couldn’t do it. So I made myself a spinach salad, and it was delicious.

Also, somewhere between November and April I realized I had gotten a little too uptight about food, and it was spilling out onto my family members. I’m not sure how to correct that really, but I’m trying to loosen up. Geesh, that’s the story of my life, trying to loosen up. I’ll get there, eventually. Won’t I?

My son is turning 10 in one week, and he is beyond excited. I remember turning 10… double digits was a big deal. He is just as excited, and we will be throwing him a party right here at the house. I’m a little nervous about the dog, and the noise, but I think we’ll get through it. Just praying for good weather so they can all play outside for most of it. My only major responsibility for this party is making a cheesecake, which I can do days in advance and I love that. Piling too many responsibilities into one day doesn’t work very well for me, so I love when I can spread things out throughout the week.

We have an MS Walk coming up here in May, and I’m excited for that as well. I haven’t participated in one since just after I was diagnosed 7 years ago. I had decided this was a good year to get back on that wagon and pull my friends and family together to show me some support. Selfish? Maybe, but I’m not sorry. This girl is learning to step out a little and ask for the things she wants. And I want a gang of people I love walking with me on a beautiful morning in May.

I think that’s enough rambling for now, don’t you think? I pray you all have a blessed Wednesday and are able to soak in some sunshine!

2016 Hot Cider Hustle 5k

Oh boy. The days just keep moving along, don’t they? And I feel like I’m forgetting something, constantly. Sometimes I actually am. Usually I’m not, or I am but¬†it’s inconsequential. But I do remember I said I was going to blog about something… the 5k I ran last weekend, perhaps?

Okay, yes. Last weekend I ran my second ever 5k, the Hot Cider Hustle. I signed up for this race back in August, with no other runners committed to running it with me. I had just decided that I needed to get it on the calendar, to give me something to work towards. And if anyone else ran it with me, even better. Then football schedules came out, and it turned out my husband and my son both would not be able to be there, as they had their respective football responsibilities. So it was just going to be me and my daughter. Now, I could get us there with the trusty Spec-Tran, but the problem would be that my daughter would be left alone while I ran the race. Not an option, as she is only 6. So a dear friend of mine offered to take us to the race and sit with my daughter while I ran. That is the first thing I had to be grateful for that day, but it gets better.

As we were driving to the park where the race was being held, I received a text from another dear friend, telling me that she was there, and had just signed up to run! She had run my first 5k with me, signing up at the last minute for that race as well. I love happy surprises. The first race I finished before she did, but only because she hadn’t even been training. This second race I was able to keep up with her new¬†pace for most of the time, but towards the end as it got more crowded I wasn’t able to keep up with her and pass all the people safely. We plan to run more races together, and hopefully next time she won’t wait until the last minute to sign up!

And my most favorite part of this race? My big brother drove up to run it too. He told me 2016-10-15-08-12-30just a few weeks prior to the race that he was going to join me, and I was both shocked and thrilled. I hadn’t even asked him to run. Why would I? He lives an hour away, and he’s a serious runner. He’s run marathons, so these 5ks are small time for him. I’m still not entirely sure why he decided to do the race. Part of it maybe was him missing the thrill of it, but I believe a bigger part was his desire to support his little sister (at least that’s what I’m telling myself). Of course he was a huge support to me, big time, and I’ll never forget it. Since he finished the race¬†long before I did, he was able to run right alongside me during my final mile, coaching me to the finish.

hotciderhustle2016

This was definitely a difficult run, especially after I lost my friend in the crowd. I had to be sure I was on the right course, because there was a 10 mile race going on as well, and signs directing the runners. I only lost my balance once, and fell into the runner I was trying to pass, but I apologized and kept moving on. No harm, no foul. My brother suggested I get a bib to wear on my back that tells people I’m disabled, so that they don’t assume I can hear them, or that I can maneuver the way the other runners can.¬†I think it’s a great idea, and I’ll definitely be looking into it for future races.

After I crossed the finish line,¬†my brother¬†came around to help me walk, because¬†I really am a mess during those¬†minutes following, when I’ve stopped running. The race volunteers were concerned, but my brother and friend (who had joined in helping me walk) assured them I was fine, that I had MS and I just needed to rest awhile. It may seem silly, but it makes me feel proud for people to know I have MS, and am running in spite of it. I may not run fast, but I’m running, and I’ll keep running until I’m forced to stop.

So, at the end of the day, I ran a very satisfying 3.1 miles in 38 minutes, 34 seconds, and was able to celebrate and share in that achievement with my big brother and two very good friends. It was certainly a day I’ll never forget.

 

 

My hands are cold

Today I went to the YMCA and ran for a bit, lifted some weights, read the newspaper. It was nice. I’m trying to increase my running speed. I ran a 5k last weekend and set myself a new Personal Record – my total time was 38:34, which is an average time of 12:25 per mile. This was only slightly better than my last 5k, but it was a movement in the right direction, so I’m happy with it. I would like to cut my time down,¬†see if I can get faster. At this point I’m not really interested in running longer races; I would just like to get those 3.1 miles done faster.

Today my daughter had a playdate at the park with a friend from the old school. They played and climbed while the moms talked. I was so glad they had that chance to see each other again, and I’m also happy that her mom and I can now say we are friends in real life (not just on Facebook). It was a lot of fun, but we’ve been home for over an hour now and my hands are still cold.

I have much to say about that race last weekend, but it’s too late in the day to collect all my thoughts properly and also, my fingers… ice cold. Seriously. Which makes typing kind of a challenge I would rather not suffer through. So I’ll leave you here and maybe revisit tomorrow or Sunday when my hands have had a chance to thaw out.