Category Archives: Food

Brain Dump

What’s on my mind, you ask? (If you didn’t, feel free to move along…) Food. Coffee. Food again. Running. Writing. A cool breeze on the back deck, birds chirping.

Yesterday I signed up for a 5k that happens in six weeks. With the exception of this morning, I had not run since before school let out for the summer, on account of my knee and hip pain (see dumb butt post). I know I can walk a 5k, no problem, but my goal is to run it the entire way. So I’ve got some work to do to get back to that place.

Side note: the cool breeze is upgrading to a brisk wind. I may have to go inside 😦

The summer is over. There were a couple trips there at the end I haven’t blogged about, but I may yet. Late is still better than never, isn’t it?

School started for my kids on Monday. It was a half day, and they don’t have school on Friday due to Labor Day, so it’s what I would call a “soft opening” to the school year. The kids are thankful for that, but I would have been right on board with jumping right in with a full week. I like my weekdays. I can do my own thing and not have to worry about what the kids are going to do. It’s one of the luxuries of disability that I’ve become accustomed to.

You know what I’m excited about today? You’re gonna laugh, or groan, or both, but I’m really excited to eat macaroni and cheese for lunch. I stopped eating dairy and eggs in June, and it’s been so much harder than giving up meat (that was last November). I’ve since learned to drink my coffee black, and found some really great non-dairy milks, yogurts, and ice creams, but had yet to find a suitable replacement for cheese. At least not any that you would buy pre-made. My cousin told me awhile back about cashew cheese that’s easy to make but I just hadn’t gotten around to trying it. Well, I ordered the necessary ingredients a few weeks ago on Amazon (easier than trying to find nutritional yeast and tapioca starch locally) and finally made a batch on Tuesday. I’ve been putting it on burritos, tacos, pizza even, and it’s surprisingly delicious! So I have a box of macaroni noodles just waiting to be dressed up with this stuff, and I believe today will be the day.

My daughter started taking ballet lessons last week. She’s been wanting to for years (she’s only 7) but I just kept putting it off because it’s way out of my comfort zone. But I finally worked up the courage to get it going, and I’m so glad I did. The smile on her face when we walked into the dance shop to buy her ballet slippers was priceless. I had not seen her light up like that in a really long time. Maybe ever. And she’s loving the practices, and looks forward to it every week. I’m really excited to see how this goes.

My son, the big sports guy, is taking a break from competitive sports for the fall. He’s going to take swim lessons at the YMCA, to learn to be a better swimmer. Then when wrestling season rolls around, he’ll be back at it. The kid has so much energy we need to keep him busy or he’ll drive us both nuts.

I chopped 8 inches off my hair back in July and I am loving it. I actually think I want to go a leeeetle bit shorter. Just a little. And highlights. The highlights are happening next week, for sure. We’ll see if I end up with just a trim, or if I decide to cut it shorter.

Oh! And did I mention I get my groceries delivered now? Oh yes, I’ve been anxiously waiting for that service to come to our area and I’ll tell you it’s even better than I had anticipated. It is saving us (me) SO MUCH stress. I don’t have to plan our meals or grocery trips around my husband’s schedule. I need stuff, I just order it online and it comes right to the house. Just like magic.

You can say things are going well. I’ve left out a lot, believe it or not, but that’s enough for today. Until next time…

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It’s always good to be home

The kids and I went camping last week with my dad’s church family. It’s something the kids have been doing every summer for the past four or five years. This was my dad’s last year to be able to go, because he is retiring next June. So there was a lot of bittersweet floating around. However, I and the kids have been invited back for future years, since they have especially bonded with a lot of the kids there. We had a lot of fun. The kids swam, rode bikes, played gaga ball (??), went kayaking (my favorite part, may write a separate post about that), and played tug of war in the river. Lots of great memories.

My legs are in shambles. Good, old fashioned muscle pain from all the walking, I suppose. I walked constantly for the whole trip and I came back home to find I had gained 5 pounds. Seriously. I guess I forgot to mention there was a lot of eating as well!

I also woke up this morning with considerable nerve pain in my feet, which is unusual for the morning. It usually only comes around in the evening. I guess my body is just paying the toll for all the fun we had. I am more than okay with that. Just gonna keep moving forward anyway, with small breaks in between. No need to rush.

Speaking of waking up this morning… my husband woke me up to let me know that the refrigerator wasn’t working, and that he needed me to move the food to the fridge in the basement. He was on his way out the door to work but he is hoping to come back at some point to fix it. We’ll see. I’m just really grateful that we have a second fridge for these sorts of occasions. So that was my first task of the day, and I’m definitely going to take advantage of an empty fridge to get it all wiped out. There are lots of sticky spots and who knows what’s in those nooks and crannies.

The kids are happy to be home. The dog is happy we’re home. Hubby is really happy we’re home. Waking up on a Monday in our own beds is surely something to be thankful for, no matter what the day has in store for us. And coffee, of course.

 

I’m a crier…

I know, I know, I went a full month without blogging. Life just gets so busy in the summer, and I’m so busy trying to be “present” that I rarely get the time or mental energy to sit down and talk about what’s going on. And now that I do, I really don’t know where to start. So I’m just going to start with today.

Today I was scheduled to have my monthly Tysabri infusion for MS. I’ve been bringing my daughter with me to these infusions while school is out, and today was no different. Except that it was, because the infusion center had moved to a new building, and today was our first visit there. I was informed upon arrival – after being dropped off by the Spec-Tran – that I could not bring my daughter back with me, per a new policy. I immediately freaked, wondering what I was going to do. Do I let her sit alone in a waiting room for the three hours, do I cancel the appointment and call Spec-Tran to see if they could come back to get us, or do I text someone who may be able to help. I ended up texting a friend, and she was able to pick her up. But she had plans that i didn’t want to disrupt, so I eventually texted my father-in-law to arrange a transfer, and also to have him pick me up when I was done, and take us both home.

After my friend had picked up my daughter, I went back up to the infusion center to finish getting checked in. The nurse who took me back, Nell, asked me how I was doing today and, since she was a familiar face and had asked the question, I of course broke into tears. Because that’s what I do. When I’m happy, sad, scared, mad, whatever, I cry. And Nell, bless her heart, told me to just let it out. So I did. And then the heat started to leave my bones and I was able to breathe. They checked my blood pressure and it was normal, believe it or not.

All said and done, everything was fine. My daughter was fine. She was safe and with people I would trust with my life. I got my medicine – even got the IV in on the first try without much spazzing in my vein – and it was fine. A really effing frustrating day, but it was all fine. And the Tigers had a rain delay so I’m actually able to relax at home on my comfy couch with my chocolate peanut butter non-dairy ice cream and watch the Tigers play.

That’s all for now, but I do want to share all the other exciting stuff that’s been going on. Trips the kids and I have taken, foods I’ve been enjoying (and some not so much), the books I’m reading, movies I’ve been watching, stuff like that. And I will, I promise. Not today, but soon. Right now, ice cream and baseball.

In sickness and in health…

You know, I try really hard to be as healthy as I can. I can’t undo the damage MS has already done to my nerves, but I can do the best with what I’ve got left and the body I’ve got now. I stopped eating meat back in November. It’s gone well, so I gave up dairy last week. Right after I cheated a few days eating meat. And then I got sick with some nasty chest congestion. Ugh. The cheating was certainly not worth it.

Then today, I’m having coffee with a friend and BAM! I started having an attack of vertigo. It was so weird, y’all, I mean I have experienced dizziness but this was so much more. I mean, everything around me seemed to be literally turning. And it lasted for a good two minutes before it calmed down. The problem was that the feeling never really went entirely away, even long after my friend had left. I texted another friend to see if what I was experiencing was normal, and if I should go the urgent care or something. I was still feeling super dizzy and I was having some numbness in my left arm. But as I was texting with her I realized that yes, I probably should go. So I called my husband to come get me. My knight in shining armor dropped everything and came as quick as he could. In the meantime my friend came over to check on me and keep an eye on my kids while my husband and I were at the urgent care.

Thankfully, all my vitals and an EKG were normal. The doctor explained that it was most likely inflammation from my recent chest cold that got transferred and consequently trapped in my ear drum, and that it should clear up if I just give it time. In the meantime he gave me an anti-nausea medication to take in case the dizziness is really bothering me or making me feel unsafe. The medicine has helped tremendously.

I was just so ecstatic that I wasn’t having a heart attack and that I didn’t end up in the hospital because I have a family reunion to go to this weekend that I am SUPER STOKED about. Because I have an amazing family full of aunts and uncles and cousins and cousins-plus whom I never get to see anymore. I was so afraid that my stupid health issues were going to ruin that, so I’m just happy. Happy, happy, happy.

I did tell my husband – who knows how hard I try to be low maintenance, and loves me despite my utter failure at it – that I’m ready to get back to the “in health” part of our marriage vows. Seriously.

Might as well call it the May Update…

Last month I published ONE blog post, and as it’s already the 10th of May, I guess I’m off to another slow start. Lest you think my silence is a bad sign, I’m poking my head out to let you know all is well. To prove it, I will now proceed with semi-coherent ranting about what I’ve been up to. What fun, yes??

So last Friday we ran another 5k race, my son and I. He absolutely killed his time from the year before, but since he had not really been training for it his recovery was pretty rough. He’s feeling better now, but the weekend he was in rare form, complaining of sore legs, not wanting to move around. I hadn’t done a lot of training either, and my finish time reflected that, but my legs felt okay after so I’m not sorry. I stayed on my feet the entire time and that’s my one true goal when I run, so I’m happy. My daughter ran the one mile race that’s not timed, and her goal was to finish, and girl, did she finish. She cramped up a little towards the end, but she was determined to not give up, and we are super proud of her for that. Both my kids are serious fighters.

I’ve been filling my weeks judiciously with shopping trips with friends, playing fetch with the dog, and going to various doctor appointments. I saw a dermatologist (Did I blog about that? I seem to remember) and discovered I do not have acne, but rosacea. Which was still possibly triggered by my round of steroids, but treated much differently. I’m also seeing my primary doctor soon in regards to what I’m calling “significant” joint pain in my right hip and knee. I suspect it’s just my osteoarthritis acting up and hoping it’s nothing more serious. We shall see.

I decided back in November to stop eating meat. It’s going fairly well, and I do feel better. I still eat some fish and some beef (the ground beef we buy from a local farmer) but only when other options aren’t readily available. I don’t have a great explanation for the change, other than the fact that I really, really love vegetables and grains and I’m disgusted by what I’ve read about the way meat is processed in this country. So my appetite for foods I used to love is pretty much gone. Like last night, I made chili dogs for the family and I totally thought I was going to eat one too. But then I just couldn’t do it. So I made myself a spinach salad, and it was delicious.

Also, somewhere between November and April I realized I had gotten a little too uptight about food, and it was spilling out onto my family members. I’m not sure how to correct that really, but I’m trying to loosen up. Geesh, that’s the story of my life, trying to loosen up. I’ll get there, eventually. Won’t I?

My son is turning 10 in one week, and he is beyond excited. I remember turning 10… double digits was a big deal. He is just as excited, and we will be throwing him a party right here at the house. I’m a little nervous about the dog, and the noise, but I think we’ll get through it. Just praying for good weather so they can all play outside for most of it. My only major responsibility for this party is making a cheesecake, which I can do days in advance and I love that. Piling too many responsibilities into one day doesn’t work very well for me, so I love when I can spread things out throughout the week.

We have an MS Walk coming up here in May, and I’m excited for that as well. I haven’t participated in one since just after I was diagnosed 7 years ago. I had decided this was a good year to get back on that wagon and pull my friends and family together to show me some support. Selfish? Maybe, but I’m not sorry. This girl is learning to step out a little and ask for the things she wants. And I want a gang of people I love walking with me on a beautiful morning in May.

I think that’s enough rambling for now, don’t you think? I pray you all have a blessed Wednesday and are able to soak in some sunshine!

Thunder bolts of lightning

Get this, I woke up with a pulled muscle in my neck, and it has me in such pain. I mean, searing, sharp, throbbing pains. I’m in such flippin’ agony I’ve been whining about it on Facebook all morning. If it was just one muscle, I could deal, but this thing is connected to all these other muscles, so every time I move something – an arm, a leg, whatever – I don’t know if it’s going to be okay or if it’s going to shoot fiery bolts of lightning up through my neck. It’s a crap shoot.

I slept on a heating pad for most of the morning and then managed to fix myself some lunch – baked sweet potato with butter and cinnamon YUM – and now I’m chillin’ on the couch with a cup of coffee. Coffee on the right, because apparently I can’t reach from the left or the pain kills me, and then the coffee spills. We can’t have any of that happening, now can we?

I went upstairs to get something and by the time I got to the top of the steps, I forgot why I was up there, so I distracted myself with laundry until it came back to me. Managed to rotate some loads, with slow and careful movements of course, and sure enough, it came to me! Drugs, I went up for the drugs. Because I can’t really deal with this pain. I normally boast a high pain tolerance, mainly because surgery and needles don’t scare me, but when it gets in the way of getting things done, that pisses me off. So I took some Aleve, and hopefully that eases a little of the pressure. If it doesn’t work, I’ll have to have the kids unload the dishwasher and take out the trash tonight.

Ok, I’m sorry, but that’s all I have for now. I’ve been a little neglectful of the blog so I really just wrote this to give you something, so as not to get out of the habit of writing. More will come. It always does.

Pre-Thanksgiving Prep

So Thanksgiving is almost here. We host, so that means we have a certain level of preparing that needs to be done. I keep it at a low level though, cuz I fail miserably at hosting if it try too hard.  We roast the turkey, we make the mashed potatoes, the corn, the stuffing, and everybody else brings the rest. I don’t decorate, though I do have a fall themed tablecloth I hope to remember to bring out for the occasion. I don’t even clean the house beyond what I do normally. Anything to minimize my stress and anxiety is worth it if it means everyone has a good time and we can enjoy each other’s company. Planning ahead helps me to both budget my energy and to make sure everything is ready. And if it’s not, I have to decide that’s okay too. Half the battle is changing my perspective. My family all knows this about me, thankfully, so that takes the pressure off. They see what needs to be done and fill in the cracks accordingly.

One thing I am striving for today though, is to clean out the fridge to make room for the turkey day leftovers. Which means I am working on using up our every day leftovers. In other words, I’m eating whatever I can. It’s a slight departure from my daily smoothies but my gut doesn’t seem to be bothered by it, yay! This morning I had scrambled eggs with red onion, red bell pepper, and feta. It was scrumptious, and I was able to rid the fridge of four containers. Still have lots of cleaning out to do but that was a fun way to get it started. Well not as much fun as it was tasty, I guess. You know what I mean, right?

I have a sick kid home with me today so I’ve taken plenty of breaks to tend to her needs, but overall it’s been a relaxing yet productive day so far. The best kind, if you ask me!