Category Archives: Deep thoughts

A momentous occasion for sure

Please ignore my awful complexion, I’m working on that. What I wanted to share with you here is that today I discovered my first gray hair. Do you see it? Right there on top, just bending towards the right? I wasn’t sure if I would ever notice my hair graying, because I don’t see colors well, and my hair is a version of blonde. My mom is a blonde and she still doesn’t have much noticeable gray hair.

So I’m surprised! I don’t know why this excites me really, I guess you could say I’m having a slow day for entertainment.

I think I’m “supposed” to dread the aging process, gray hair, crow’s feet, wrinkles, etc. But I don’t mind. I think with age comes experience and wisdom and personal growth, and those are all good things I treasure. So I’ll take it all in one big package and will hold me head high, thank you very much.

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HE KNOWS

I’ve been trying to get back to reading scripture on a daily basis, and I’m glad I’ve been doing it. It’s a great comfort, and God still uses it to speak to me. This morning I was reading in Jeremiah where it talks about the Israelites and how God was angry with them because of their wickedness. That seems to be a common theme in the Old Testament. But after the weekend I had, it really helped me to know that God understands what I’m feeling. See, my daughter had been wanting a mermaid tail for her birthday. I bought her one, but it wasn’t the exact one that she wanted, or rather it was missing a piece she wanted. She was heartbroken and to be honest, ungrateful. It didn’t help that she was at her birthday party, in front of all her friends. I was really upset with her. Then later that night I was trying to help my son get his football uniform and equipment together for turning in the following day, and I was asking him where things were. He had a friend over, so he didn’t like me interrupting him with these questions and told me to leave him alone. So I let him do his own laundry!

But the point is, I had been pretty upset and down about having two children acting ungrateful, after a week spent doing things for them (chaperoning the school field trip, putting together preparations for the birthday party, cooking, cleaning, etc.). So it was really therapeutic and healing to read this morning, and to know that God can relate to what I was feeling. He knows what it’s like to have ungrateful children, and yet He loves us all just the same.

“Nevertheless, I will bring health and healing to it; I will heal my people and will let them enjoy abundant peace and security. I will bring Judah and Israel back from captivity and will rebuild them as they were before.” Jeremiah 33:6-7

How MS Defines Me

I started this post three days ago, but didn’t get past the title. Now I’m deciding to continue with it, with the expectation that I can convey a clear and complete thought. Or maybe two.

I am fatigued. I am not handling it as well as usual, and I think that’s just because my running had given me a nice reprieve from the normal levels of fatigue. But having the kids home all week coupled with my MS medication running low (I get infused with Tysabri every four weeks), seems to have been too much on my body.

What bothers me most about the fatigue, at least this time around, is the effect it has on my cognition. I just can’t seem to make the connections, and even when I do, it takes an uncomfortably long time. So I’m awake, but I’m not really here. I struggle to finish sentences, I forget where I was headed within the house, I can’t put two and two together. And that’s frustrating, but I know this too shall pass. The kids go back to school tomorrow, I’ll go back to the infusion center hopefully Friday, and I will keep taking breaks when they are needed. And my family will be patient as always, they will pick up the slack where needed, it will be okay. We accommodate, together. I will get the rest I need. This is why I make the big bucks courtesy of Social Security, right? It will be okay.

MS is part of my life. It always will be, and I’m not sorry about that. It has taught me how to be patient and gracious, and how to laugh at myself. It has required strength I wouldn’t otherwise know I had. So yes, I guess you could say I am defined by my disability. I wouldn’t have it any other way.

Relishing the daily humdrum

Hmm. Well, I’ve kind of been feeling a blog post on the edge of my fingertips for some time (a couple weeks, not long), but now that I find the time and manage to sit down at my computer I’m at a loss for words. Isn’t that funny how that works? But now that I’ve started I’m sure the words will come. It usually happens like that. Usually.

Remember how I said I wanted to write a book? That’s not really all that true anymore. I love writing, yes, but the book idea was kind of daunting. It was never really my idea. Lots of people told me, after all that had happened to me in such a short period of time, that I should write a book. And I do love to write, so I thought it made sense. But I really never felt a nudge from God on that. He was pretty clear with me about writing this blog, and sharing my stories with others, but that was it. I do love to share my stories, when I can remember them, so I’m sure it’s possible that some day down the road we’ll get those stories all gathered together in a book, but I’m no longer putting pressure on myself to make that happen.

So I’ve decided to focus on other things lately. I am focusing on embracing the gift of each moment, embracing this new life I’ve found myself in. What does that look like? Nothing really out of the ordinary, really. Taking care of our home, taking care of the kids. Spending time with my family and friends. Wrestling tournaments, Girl Scout troop meetings, class parties, shopping trips. All blissfully ordinary things.

I don’t want to bore you with the details of those ordinary things, but I do want to explain why they are so significant to me. When I lost my hearing and my vision 2 1/2 years ago and I was in the hospital, they weren’t sure I was going to make it. But I did, I made it. And the recovery process that followed was tough on all of us, but I finally feel like we have made it THROUGH. We, as a family, have recovered, adjusted, adapted, and we are moving on with our lives. Granted, it’s quite different than what we may have envisioned, but I am firm in the belief that it is better. We have challenges, yes, but we are better off in spite of those challenges. Or maybe, perhaps, because of those challenges.  Life is good, folks. Real good.

“Every day is new again
Every day is yours to win
And that’s how heroes are made”

“Every Day is Yours to Win” ~R.E.M.

Timing

I get these daily Upper Room devotionals sent to my email. I For the past couple of months I’ve been deleting them along with the rest of my junk mail, without even opening them to see what the subject of the day was.

Today for some reason I decided to open the email.

The subject? Hearing aids. More specifically, that it is such a gift that we don’t have to have perfect hearing to hear from God. He finds ways to speak to us in all sorts of ways. We just have to be listening. Well, I’m listening now.

I love how God sneaks his way back in to my wandering heart.

Social anxieties

Lately I have found myself saying that I feel like I’m that shy 1st grader, newly transplanted to a new town, new school, new kids to befriend. I am certainly not that shy girl anymore. If this whole plunge into deafness and visual impairment has taught me anything, it’s how to talk to new people (doctors, nurses, receptionists, etc.). But still that 1st grader rears her frizzy toothless head every now and then. I’m slowly making new friends here in this new town, in this new neighborhood, but not all that gracefully. I feel like I’m stumbling and tripping as I do it. It makes for awkward moments, but either no one notices or they are comforted to learn they are not alone. I just hope it’s the latter.
What do you think? Am I too old to be feeling this way? Does it matter?

Starting Fresh

It’s the first day of a new year. I am making no new year resolutions, but I will continue striving to be better. To live in every moment, to find the joy in what I have. Finding that joy is sometimes a challenge, but it’s always worth it. It always overshadows the crud, and the abilities I lost. Last year brought some really great changes in our lives, and maybe I’ve been remiss to share them all here on the blog. The dilemma with writing about all the good things that are going on is that you are too busy embracing those good things to write about them. I believe that is a fantastic dilemma to have. And while I’m tempted to go back and recap everything, I would rather just move forward. Because MOVING FORWARD – well, I am forever grateful to be able to do that. In everything. I’m not stuck in a state of fear or confusion or even waiting for answers. I’m moving ahead. The people around me are moving too and this time I feel like I’m with them. Oh to feel whole again. So here’s to 2016! A year of new life and wholeness. Peace, my friends, shalom.