All posts by Still Mindy

Forty-something, married with two kids and a dog. Living every day to the fullest with multiple sclerosis, impaired vision, and deafness. Couldn't make it without my Savior, Jesus Christ!

Counting down to activation day

Well, we still have just a touch under 3 weeks until I can hope to have a normal conversation with my husband. As if communication within a marriage isn’t challenge enough, take away the ability of one spouse to hear the other, and you have a recipe for disaster. That’s the hand we’ve been dealt, and we’ve been making it work for the past 10 months. I won’t say we’ve been raking in the chips, but we’re still in the game, with no plans of folding (I’m not a poker champion, but I played one on tv).

I don’t have a lot of knowledge regarding these cochlear implants (ci’s), but I’m told they are amazing. I have not heard one single negative report. They are truly a miracle. Rush Limbaugh, who experienced the same type of hearing loss I did, and now has two ci’s, makes a very valuable point regarding the ci. He basically puts it into perspective by pointing out that if he had been born even 30 years earlier , and went deaf at the age he did, it would have been the end of his radio hosting career. To think that on the timeline of history of hundreds, or even thousands, of years, that we are here at this point in time. This point in time, where super smart scientists and medical researchers have made this discovery to restore hearing for deaf people. What an amazing thing. I am astounded and beyond excited.

On activation day, I will be joined by my husband, my son and daughter, and my mother-in-law. It will be a long meeting, so Grandma will be helpful in entertaining the kids. That is, unless Natalie wants to learn all about audiology (it’s not surgery, but it’s still pretty interesting). I’m keeping my expectations low, as I’ve been advised, so who knows how the day will go. If it goes anything like my surgery did, it will be just fine. I am really looking forward to hearing everyone’s voices again, but I know they may not sound the same. Heck, they probably won’t even sound natural at first, but that’s ok. This is just the next step on the road back to hearing. We just took a little detour, that’s all.

I have been saved, healed, and delivered; sozo. Praise the Lord!

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Word to the wise

When it’s this soon after Easter, and you want to show a candy-loving 4-year old a robin’s egg, be sure to let her know it is NOT candy.

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Freedoms to enjoy

My kids are back from Grandma’s and the house feels normal again. I missed them. They had so much fun at Grandma’s. She threw Luke a second birthday party, as I’m told she did back in November for Natalie (I was in the hospital and quite ill). She even made Luke his Minecraft cake, and that makes me happy. I was upset that I wasn’t able to make it for him, because I know how much it meant to him. So it was nice to see that Grandma was able to do it. They were able to get some swimming in too. They had a fun weekend.

So this afternoon they are just playing and relaxing, kind of low key. I was putting away some laundry and Natalie came to me and said that she was crying “happy cries”. When I asked her why, she said it was because today was the best day ever. I guess she missed us too.

Friday afternoon, Luke was home with me, and we had gone around the block, and then played at the park at the end of our street. He played on the monkey bars, and then we swung on the swings. We chatted a bit. Nothing exciting or out of the ordinary. But then he grabbed my phone to tell me “this is the best park day ever.”

So in the course of a few days, both my children have expressed to me that they are happy, without any provocation. I can’t really fully express how happy that makes me. We have all been through a very rough time as a family this past year, each in our own ways. But this past week God has really shown me (through my own children, especially) how truly faithful He really is to strengthen us, to grow us, and to bless us with what we need and more.

Today is Memorial Day, and I thought I should write a post about that, and what it means, but this is all I’ve got. What I I want to say is that I am so thankful to all the men and women who put their lives on the line so that people like us can enjoy the freedoms we have. Freedom to play, swim, eat cake. Freedom to be a family. Freedom to be Christians. Thank you to all our veterans. Whether killed in active duty or not, each one of you made a choice to fight for the rest of us, knowing you may never come home.  And for that, we should all be grateful.

What freedoms are you grateful for? Did someone you know die for our country? Please, share with us here on my blog (not on my FB post, as that is not accessible by everyone). I pray you all are having a blessed day and enjoying your freedom!

Showing our ears

Showing our ears

Check this out! Lipreading Mom asked people to show her their ears, to promote awareness of the deaf and hard of hearing community. It’s sort of a way to encourage confidence and pride for those who wear hearing aids (and those who don’t!). I follow her blog, and I love her honesty. It was a struggle for her to be comfortable wearing hearing aids, but she is doing it and she is not ashamed! She is an inspiration to me as I begin wearing my right ear cochlear implant (in 25 days). And when that happens, I’ll be sending her another picture. For now, it’s just the incision. If you’re not squeamish, click the link, scroll down until you see the back of my head with my ear pulled back. That’s me, the bionic woman! 

It appears from her website that she is still accepting photos, so I would encourage you, especially if you are deaf or hard of hearing, to submit your photo. If anything, it would be a blessing to her!

Subtle changes

I just have to publicize this. I’ve been secretly becoming aware that my eyesight is getting better. The changes are subtle but they are becoming more frequent. I’m finding the mouse arrow faster. When I was riding in the car on the way to Dr. Hong’s office to get my stitches out, the scenery just seemed different. Clearer, like I was seeing things better. I still have a slight blind spot, but things do seem to be improving. Then today, I noticed something in the shower. This may be TMI, but My hair falls out a lot, and when it is still stuck to me after I turn the water off, I remove it and collect it on a certain spot on the shower wall, to wipe off after I get my towel. Since the damage to my optic nerves, I haven’t been able to actually see the strands of hair, but today I was! So either my hair is getting darker (not likely) or my eyes truly are better!

Healing of my eyes has been one of my most desperate prayer requests, and I am stoked to see God answering it! Praise God!

Psalm 30:2 “LORD my God, I called to you for help, and you healed me.” (NIV)