All posts by Still Mindy

Thirty-something, married with two kids and a dog. Living every day to the fullest with multiple sclerosis, impaired vision, and deafness. Couldn't make it without my Savior, Jesus Christ!

He hears me

Last night as I lay in bed I asked God for help. Nothing fancy. Just that – please help me. I’m feeling lost and unwell and discouraged, and I need your help. Thank you, amen.

And then I got up this morning and read my morning devotional from Our Daily Bread: https://odb.org/2019/01/02/its-good-to-ask/

I don’t think this could have been any more relevant to how I’ve been feeling lately. The scripture alone spoke volumes to my heart. From Psalm 143:4-11: “Therefore my spirit faints within me”, “I stretch out my hands to you; my soul thirsts for you like a parched land.” “I have fled to you for refuge. Teach me to do your will, for you are my God!” (I love the Psalms. I feel like David and I would have been friends.)

To give you some specifics as to why I’ve been feeling down in the dumps – full disclosure is a strength of mine lol – my brain is foggy. My body hurts. I get random pains on my left side, both the sharp kind and the throbbing kind. I’m still sore from a long car ride two days ago, and I’m not sure how long that will last. I slept ten hours last night and I’m still tired. Even after coffee. I don’t remember what “feeling rested” feels like. Sure, part of this may be aging, but more likely all of this is exacerbated by the M.S. Multiple sclerosis has destroyed my nerves and while most days I look just fine, underneath everything is going haywire. And I can deal with the inconvenience, but the permanence scares me. There is no cure. It’s here to stay. But I can decide how I want to look at it. I can decide to live in fear of the unknown of the future, or I can decide to accept how it affects me today and find ways to enjoy life despite it.  I need to choose the latter.

But back to this morning’s message. What I’m learning here is that sometimes we don’t need concrete answers. Sometimes it’s enough comfort to know that we are not alone, and to know that God is listening to our prayers. I am encouraged today. Yes, I’m still in a gray sort of mood, and my body is still not cooperating like I want it to, but there is a light shining through the gray, and that is Jesus. So I’m just going to keep my eyes on Him and trust Him to guide me through to wherever it is He wants me to go. One. Day. At. A. Time.

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New Year, Same Me

I’m not big on resolutions, so I don’t make them. However, I’ve been hemming and hawing the last couple weeks about rejoining CrossFit. I stopped going a couple months ago to cut back on our expenses, but I think that was a bad move. I’ve since been sliding slowly toward depression, and have stopped running as well. It’s time someone gave me a swift butt-kicking to get me back in gear. So maybe I make this decision, to rejoin CrossFit and resume running regularly, and maybe it just happens to be the new year. So you could call it a New Year’s Resolution, or you could just call it coincidental timing.

So I’m just poking my head up to share that. I’m still here, and I’m doing fine. I’m just hibernating. I’ve been hunkered down at home, enjoying quality time with the family, and secretly looking forward to the kids going back to school so I can find a routine I can stick with. We’ve had a really great Christmas break so far, and we still have several days of it left. I pray you are all enjoying yourselves around these holidays and I wish you all a blessed and memorable 2019.

Frustration

I’m frustrated today. Frustrated and grumpy. It’s not anything specific, really. Just more of a general feeling. I was trying to crochet but it’s a challenging basket weave pattern and I just didn’t feel like messing with it anymore. This frustration makes me very unpleasant to be around because I’m a major grump. So I’m upstairs with a beer and a laptop, and I’m hashing it out on the keyboard. I was working on my book for awhile, with my cochlear implant volumes turned way down, and my son came into the room and scared the living daylights out of me. I didn’t hear him come in!! It’s a good thing I wasn’t holding my beer at the time. I was at a stuck point with the book anyway so the distraction was nice. He read some parts of the book and then we got to talking about what he remembered from when I first lost my hearing. It’s always interesting to hear it from my kids’ perspectives.

I think what I’ve learned today, or was reminded of, is that writing calms me. That frustrated feeling has almost completely left me, and I don’t feel like such a grump anymore. And I appreciate that you are willing to read all the silly things I write. So thank you, reader. From the bottom of my heart, thank you.

I’m a professional napper, I guess

It’s December. My 40th December on this planet, so I am not so surprised anymore when I get all gloomy and just want to stay holed up in my cocoon (i.e. blankets, sweaters, recliner). I’m reading through my old journals as I’m trying to write my book and I’m noticing a common theme: I nap a lot. I don’t remember ever being much of a napper, and was always a little envious of people like my husband who could nap with ease. But now I feel like I’ve really mastered the art. Seriously. Y’all, I nap like it’s my JOB.

And that’s all I have to say for now, because, of course, it’s time to go back to bed.

ZZZZZZZZZZZ……………

Distraction

Can I just be honest right now? Because of course, everything else I’ve written on this blog is completely made up.  Just kidding. But seriously. I want to be lazy. I want to abandon my responsibilities and sit, curled up on the couch all day crocheting or reading or playing Farmville. But there’s this nagging voice, and my hunch is that it is the Holy Spirit and I don’t want to admit it, that says I was made for more, and that being lazy is not God’s purpose for me. I know that God places value in rest, that He commands it even, but how do I know when I’m taking it too far? I wish I had a cut and dried prescription that says you need ‘x’ amount of rest on these days, and ‘x’ amount of time you ought to be working. It’s probably true that I need more rest than the average 40 year old woman, since I have MS, but that doesn’t really make this dilemma any easier to solve. I’m in better health than your average woman with MS, so there’s no template for me to go by. Not that I think there should be one. I’m just thinking out loud here.

Journaling is very helpful. It helps me focus, and especially helps because I treat it like a prayer. All of my journaling is really just a conversation between me and God, and He often speaks to me through my journaling. He probably speaks to me a lot more often than that, of course, I just don’t hear it because I’m distracted by everything around me. But when I’m typing, there’s no distraction. I’m entirely focused on the conversation.

So what I feel like God has been whispering to me over the past several months (yes, I’m a slow learner) is that I am too distracted. So I asked for His help and guidance with life and time management and finding a balance between work and rest and all the other stuff I want to do, like writing my book, running, baking cookies and crocheting.

This is so silly, but the biggest distraction I’ve allowed into my life is a little game called Farmville 2. Heard of it? It’s super addictive because there are always things to do, missions to complete, challenges to meet. And it’s fun, but it sucks the life out of you. Or at least it does for me. I’m sure there are people who are able to balance games like this with real life, but I’m not one of them. I am the demographic they built this game for. I know they devote lots of money into research to know how to keep people addicted to their games in the hopes they will spend money, but I never spend money in the game. I am firm about that rule. So the joke’s on them, right? Wrong. Because I have still let it steal hours and hours, days even, of my life. I’ve decided I’m done with it. For good, I hope. Please.

Romans 7:15 ESV “For I do not understand my own actions. For I do not do what I want, but I do the very thing I hate.”

Hebrews 12:1 NIV “Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles. And let us run with perseverance the race marked out for us, fixing our eyes on Jesus, the pioneer and perfecter of our faith. For the joy set before him he endured the cross, scorning its shame, and sat down at the right hand of the throne of God.”

I feel better, I think. Last time I uninstalled the game I think I made it a full three days. We’ll see if I can make it longer than that this time. The last time, I hope. Gee whiz.

I’ve been crocheting

I’ve been busy, but not really busy. What I’ve been busy NOT really doing, is all the things I want to do, like taking care of our home and writing my book. What I’ve been doing instead is playing Farmville. And crocheting. But at least the crocheting serves a good purpose. See, I’m making hats with all the leftover yarn in my possession, and I plan to give them to the cancer center where I get my monthly infusions. I noticed this last infusion that they had a bunch laid out for people to take and when I asked about them they said they were from volunteers, and they can always use more so they would be happy to have me donate. Hats are fun because you can play around with different patterns and if you don’t like it, you know quick enough and you can just undo and start again with a different pattern. And I’m so thrilled I found a place to make them for. I love crocheting, it’s like therapy for me, and even better if it’s going toward a good cause.

I went for a run yesterday after a sort of long hiatus and it felt really good. I need to get better at running on a regular basis. A friend and I are planning to run a half marathon together next fall so I have something to work towards. I think she’s been a lot more disciplined than I am at the training, and she has five kids! So I have literally zero valid excuses. Unless you count the MS, but I don’t ever like to give it that much credit. There may be some day down the road MS decides to take away my ability to run, but until then, I need to do it. Because I can. And because it’s good for my physical and mental health.

As for the book, I am still writing it and I suppose you could say I’ve made good progress, but I kind of got stuck. I don’t know where to go next. So I’m giving it time and praying that I get some more inspiration to write more. There’s no question I have a lot to say, and the story I’m ultimately trying to tell has lots of details. It’s just that my mind doesn’t work as well as it used to and it’s hard to make connections. Disjointed, I suppose is the best description of my cache of memories. I’ll get there though. I’m persistent and stubborn and I refuse to give up.

So we are in December, folks! Did you know? Which means Christmas and time with family, and snow. We’ve purchased all our gifts for the kids via mail order (hello Amazon Prime!), and I believe most of them have arrived, so I think I might wrap them up early so I don’t feel like I have to rush to do it at the last minute. Plus I love the look of wrapped presents. We tried not to go overboard with the kids this year, but I’m still excited for Christmas morning. We all understand and recognize that Christmas is all about celebrating Jesus, but we are still human and enjoy seeing our kids light up when they open their presents. I kind of feel like God has a similar sense of joy when He gives us good gifts. Maybe. I’ll have to ask Him some day.

What else? I’ve still been baking cookies. It’s been a lot of fun to get that love back, and I have a lot of people around who love cookies and can appreciate them. I’m a one trick pony with the chocolate chip though. I tried to make something else and it totally flopped. Tasted fine, but didn’t set up like they were supposed to. So, kind of a literal flop. But I suppose cookies don’t really have to look good as long as they taste amazing, right? It’s all about the flavor. I’ve got that awesome vanilla from Mexico and dark chocolate chips so I’m due for another batch or three in the next few days. Come on over! I’ll make cookies and coffee!

Lately. Oh, and cookies.

My son woke me up an hour early today, as payback for waking him up Monday when it was a snow day. Not cool, bro. Not cool.

So lately I have been doing okay, I guess. I feel a bit like I’m hanging on by just a thread, but at least it’s a strong thread. My faith, my redeemer Jesus Christ, sustains me and keeps me from going all the way crazy. So I’m extremely thankful for that.

Things have just been busy, moving from one event to the next, and I have a hard time keeping up with the activity. Because it’s not enough to just be there. I also have work I’m responsible for, between housework and volunteering for the church. So I sort of worry that my body will fail on me and leave it all hanging. And I know I need to rest and pace myself, blah blah blah, but it’s a never-ending life lesson, I suppose. I’ll get there. Maybe.

I’m not complaining, by any means, because I still remember when I was sick and couldn’t do most things on my own, and I’m thankful for my recovered abilities. It’s just the adjustment that takes time and lots of patience. Recovery is tricky. Disability is a whole new world.

I absolutely love paying bills and balancing a checkbook, and I am only able to do these things thanks to technology. My computer and apps on my phone allow me to view things in high contrast, which works well because white backgrounds seem to make the print disappear for me. Which is why I don’t read paper books anymore. All my reading is done with the Kindle app, with a black background and white font. It’s wonderful. I am very thankful that I’ve not lost my ability to read, because it’s one thing I’ve always loved. I have lost a lot with vision loss and becoming deaf, yes, but I’ve been able to hold on to so much too. And for that I am grateful.

I’m still working on writing that book, and it’s exciting and scary all at the same time. This is going to be a slow process but I’ll get it done. I’ve been able to find time for it here and there, so… eventually, right?

Now I just need to find time to bake some cookies because it’s that time of year and I have a giant bottle of Mexican vanilla calling my name!