I know, I know, I went a full month without blogging. Life just gets so busy in the summer, and I’m so busy trying to be “present” that I rarely get the time or mental energy to sit down and talk about what’s going on. And now that I do, I really don’t know where to start. So I’m just going to start with today.
Today I was scheduled to have my monthly Tysabri infusion for MS. I’ve been bringing my daughter with me to these infusions while school is out, and today was no different. Except that it was, because the infusion center had moved to a new building, and today was our first visit there. I was informed upon arrival – after being dropped off by the Spec-Tran – that I could not bring my daughter back with me, per a new policy. I immediately freaked, wondering what I was going to do. Do I let her sit alone in a waiting room for the three hours, do I cancel the appointment and call Spec-Tran to see if they could come back to get us, or do I text someone who may be able to help. I ended up texting a friend, and she was able to pick her up. But she had plans that i didn’t want to disrupt, so I eventually texted my father-in-law to arrange a transfer, and also to have him pick me up when I was done, and take us both home.
After my friend had picked up my daughter, I went back up to the infusion center to finish getting checked in. The nurse who took me back, Nell, asked me how I was doing today and, since she was a familiar face and had asked the question, I of course broke into tears. Because that’s what I do. When I’m happy, sad, scared, mad, whatever, I cry. And Nell, bless her heart, told me to just let it out. So I did. And then the heat started to leave my bones and I was able to breathe. They checked my blood pressure and it was normal, believe it or not.
All said and done, everything was fine. My daughter was fine. She was safe and with people I would trust with my life. I got my medicine – even got the IV in on the first try without much spazzing in my vein – and it was fine. A really effing frustrating day, but it was all fine. And the Tigers had a rain delay so I’m actually able to relax at home on my comfy couch with my chocolate peanut butter non-dairy ice cream and watch the Tigers play.
That’s all for now, but I do want to share all the other exciting stuff that’s been going on. Trips the kids and I have taken, foods I’ve been enjoying (and some not so much), the books I’m reading, movies I’ve been watching, stuff like that. And I will, I promise. Not today, but soon. Right now, ice cream and baseball.