Follow up to the whiny post

I’m feeling a little bit less whiny… a teensy less. I did get my eyes checked, and they were worse, as I had suspected. So we postponed my Tysabri infusion and instead got me set up for three consecutive days of Solumedrol, a high dose steroid that is given intravenously. This is a common treatment for MS patients when they have flare-ups of symptoms. I’ve had them before, and I’ve always responded well. So I wasn’t too worried about the actual treatment, but I was pretty devastated to be back in this situation. The MS flare-up. I had been doing so well, for so long, that I believe I got too comfortable. So I wasn’t really ready for this. But I suppose you never really can be ready for this kind of thing. That’s the cruddy thing about this disease, it’s unpredictability. But, with lots of support from family and friends, we got through the infusion part. Now I’m just back at home, with my routines, and taking oral steroids (Prednisone) to taper down from the high dose infusions.

I’m not crazy about the side effects of Prednisone, but I guess it’s a necessary evil. I do feel like my vision has changed already. I noticed Monday it felt like my visual field had opened back up a bit, at least up close. I still have difficulty recognizing faces from far away. I’ll go back to the neuro-ophthalmologist on February 17 and we’ll see what progress I’ve made. I’m hopeful.

So that’s my update for now. The Prednisone has me kind of moody, so I realize I’m lacking any real spark, but I’ll get it back – I promise! 🙂

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