We call this an ouchie wah-wah

So thanks to my poor vision, I guess, I ran head first into my daughter’s loft bed. Again. This time super duper hard. So I think I’m gonna have a major goose egg on my forehead by morning. We need to put up a sign that says in bold, high contrast colors, “DUCK!!” Which, coincidentally, rhymes with the word I would have said had my daughter not been right there to witness my stupidity.

Can we just start over now?

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Brain Dump

What’s on my mind, you ask? (If you didn’t, feel free to move along…)¬†Food. Coffee. Food again. Running. Writing. A cool breeze on the back deck, birds chirping.

Yesterday I signed up for a 5k that happens in six weeks. With the exception of this morning, I had not run since before school let out for the summer, on account of my knee and hip pain (see dumb butt post). I know I can walk a 5k, no problem, but my goal is to run it the entire way. So I’ve got some work to do to get back to that place.

Side note: the cool breeze is upgrading to a brisk wind. I may have to go inside ūüė¶

The summer is over. There were a couple trips there at the end I haven’t blogged about, but I may yet. Late is still better than never, isn’t it?

School started for my kids on Monday. It was a half day, and they don’t have school on Friday due to Labor Day, so it’s what I would call a “soft opening” to the school year. The kids are thankful for that, but I would have been right on board with jumping right in with a full week. I like my weekdays. I can do my own thing and not have to worry about what the kids are going to do. It’s one of the luxuries of disability that I’ve become accustomed to.

You know what I’m excited about today? You’re gonna laugh, or groan, or both, but I’m really excited to eat macaroni and cheese for lunch. I stopped eating dairy and eggs in June, and it’s been so much harder than giving up meat (that was last November). I’ve since learned to drink my coffee black, and found some really great non-dairy milks, yogurts, and ice creams, but had yet to find a suitable replacement for cheese. At least not any that you would buy pre-made. My cousin told me awhile back about cashew cheese that’s easy to make but I just hadn’t gotten around to trying it. Well, I ordered the necessary ingredients a few weeks ago on Amazon (easier than trying to find nutritional yeast and tapioca starch locally) and finally made a batch on Tuesday. I’ve been putting it on burritos, tacos, pizza even, and it’s surprisingly delicious! So I have a box of macaroni noodles just waiting to be dressed up with this stuff, and I believe today will be the day.

My daughter started taking ballet lessons last week. She’s been wanting to for years (she’s only 7) but I just kept putting it off because it’s way out of my comfort zone. But I finally worked up the courage to get it going, and I’m so glad I did. The smile on her face when we walked into the dance shop to buy her ballet slippers was priceless. I had not seen her light up like that in a really long time. Maybe ever. And she’s loving the practices, and looks forward to it every week. I’m really excited to see how this goes.

My son, the big sports guy, is taking a break from competitive sports for the fall. He’s going to take swim lessons at the YMCA, to learn to be a better swimmer. Then when wrestling season rolls around, he’ll be back at it. The kid has so much energy we need to keep him busy or he’ll drive us both nuts.

I chopped 8 inches off my hair back in July and I am loving it. I actually think I want to go a leeeetle bit shorter. Just a little. And highlights. The highlights are happening next week, for sure. We’ll see if I end up with just a trim, or if I decide to cut it shorter.

Oh! And did I mention I get my groceries delivered now? Oh yes, I’ve been anxiously waiting for that service to come to our area and I’ll tell you it’s even better than I had anticipated. It is saving us (me) SO MUCH stress. I don’t have to plan our meals or grocery trips around my husband’s schedule. I need stuff, I just order it online and it comes right to the house. Just like magic.

You can say things are going well. I’ve left out a lot, believe it or not, but that’s enough for today. Until next time…

It’s always good to be home

The kids and I went camping last week with my dad’s church family. It’s something the kids have been doing every summer for the past four or five years. This was my dad’s last year to be able to go, because he is retiring next June. So there was a lot of bittersweet floating around. However, I and the kids have been invited back for future years, since they have especially bonded with a lot of the kids there. We had a lot of fun. The kids swam, rode bikes, played gaga ball (??), went kayaking (my favorite part, may write a separate post about that), and played tug of war in the river. Lots of great memories.

My legs are in shambles. Good, old fashioned muscle pain from all the walking, I suppose. I walked constantly for the whole trip and I came back home to find I had gained 5 pounds. Seriously. I guess I forgot to mention there was a lot of eating as well!

I also woke up this morning with considerable nerve pain in my feet, which is unusual for the morning. It usually only comes around in the evening. I guess my body is just paying the toll for all the fun we had. I am more than okay with that. Just gonna keep moving forward anyway, with small breaks in between. No need to rush.

Speaking of waking up this morning… my husband woke me up to let me know that the refrigerator wasn’t working, and that he needed me to move the food to the fridge in the basement. He was on his way out the door to work but he is hoping to come back at some point to fix it. We’ll see. I’m just really grateful that we have a second fridge for these sorts of occasions. So that was my first task of the day, and I’m definitely going to take advantage of an empty fridge to get it all wiped out. There are lots of sticky spots and who knows what’s in those nooks and crannies.

The kids are happy to be home. The dog is happy we’re home. Hubby is really happy we’re home. Waking up on a Monday in our own beds is surely something to be thankful for, no matter what the day has in store for us. And coffee, of course.

 

Oklahoma in July

The kids and I flew to Oklahoma to visit Grandma Deb and Grandpa Dave (my mom and stepdad) for a whole week! EEK!! The last time any of us had been on a plane, Luke was 2 and Natalie was in utero. So it was pretty much like their first time flying. I was a nervous wreck through all of it, but the kids did great. ¬†And once we were at Grandma’s, we settled in quite nicely. Pictured below on Natalie’s head is their green cheek conure, Riley. I learned very quickly that I have a new fear of birds flying near my head, mainly because when he flew toward me I could feel the wind from his wings before I could see where he was. Thankfully, he was pretty harmless, and by the end of the week we were getting along just fine.

We had so many activities in store! Our first full day there we went hiking near some natural springs. I took a lot of really blurry photos of that, so you’ll just have to trust me that it was really cool and the kids enjoyed themselves.

The next day Grandma took us to the salt plains to dig for selenite crystals. I was happy to stand around and take pictures while they got dirty. Luke found the first crystal, which led us to the mother load of crystals. It was pretty exciting. (Oh, and I got to drive a car! Since it was wide open space and no one was around. Don’t tell anyone though lol)

Another day we visited the children’s science museum in town. This was similar to the one we have back home, but with a different mix of things to see. The kids had a blast here too, and it was a good way to stay out of the 100 degree weather.

I’m sure I’m getting the order of events mixed up, but at some point towards the end of the week we visited what we were calling the rock museum. The museum was a house, made entirely out of rocks, that belonged to a couple that did a bunch of stuff, and kept pretty much everything they owned. So now they keep it on display and let people come and look at it. Which is funny to me, because it’s just some people’s old things, preserved for no apparent reason. I still thought it was pretty cool to see all these items from an entirely different era, and the kids were great sports about it. Grandma even bought them some geode stones to take home and smash open.

Let’s see… we also did some put-put golfing, because my poor deprived children had never been, can you believe it!? I beat everybody, both times we went, but the kids scored a couple holes in one, so they were strong opponents, for sure. We celebrated the second day by taking them out for ice cream, as you can see below.

There was also grilling, eating out, a bit of swimming in the blow up pool to cool off, jewelry making with Grandma, and of course lots of playing with Riley, the bird. I’m sure I’m leaving out details. Yes, flying was stressful for me, having to rely on the kids to see and hear things for me, but it was really nice to get where we were going so quickly. For all the fun we had and getting some quality time with Grandma and Grandpa, it was totally worth it.¬†It was a fantastic, full week of fun and I am so glad we went. We hope to do it again next year.

 

I’m a crier…

I know, I know, I went a full month without blogging. Life just gets so busy in the summer, and I’m so busy trying to be “present” that I rarely get the time or mental energy to sit down and talk about what’s going on. And now that I do, I really don’t know where to start. So I’m just going to start with today.

Today I was scheduled to have my monthly Tysabri infusion for MS. I’ve been bringing my daughter with me to these infusions while school is out, and today was no different. Except that it was, because the infusion center had moved to a new building, and today was our first visit there. I was informed upon arrival – after being dropped off by the Spec-Tran – that I could not bring my daughter back with me, per a new policy. I immediately freaked, wondering what I was going to do. Do I let her sit alone in a waiting room for the three hours, do I cancel the appointment and call Spec-Tran to see if they could come back to get us, or do I text someone who may be able to help. I ended up texting a friend, and she was able to pick her up. But she had plans that i didn’t want to disrupt, so I eventually texted my father-in-law to arrange a transfer, and also to have him pick me up when I was done, and take us both home.

After my friend had picked up my daughter, I went back up to the infusion center to finish getting checked in. The nurse who took me back, Nell, asked me how I was doing today and, since she was a familiar face and had asked the question, I of course broke into tears. Because that’s what I do. When I’m happy, sad, scared, mad, whatever, I cry. And Nell, bless her heart, told me to just let it out. So I did. And then the heat started to leave my bones and I was able to breathe. They checked my blood pressure and it was normal, believe it or not.

All said and done, everything was fine. My daughter was fine. She was safe and with people I would trust with my life. I got my medicine – even got the IV in on the first try without much spazzing in my vein – and it was fine. A really effing frustrating day, but it was all fine. And the Tigers had a rain delay so I’m actually able to relax at home on my comfy couch with my chocolate peanut butter non-dairy ice cream and watch the Tigers play.

That’s all for now, but I do want to share all the other exciting stuff that’s been going on. Trips the kids and I have taken, foods I’ve been enjoying (and some not so much), the books I’m reading, movies I’ve been watching, stuff like that. And I will, I promise. Not today, but soon. Right now, ice cream and baseball.

In sickness and in health…

You know, I try really hard to be as healthy as I can. I can’t undo the damage MS has already done to my nerves, but I can do the best with what I’ve got left and the body I’ve got now. I stopped eating meat back in November. It’s gone well, so I gave up dairy last week. Right after I cheated a few days eating meat. And then I got sick with some nasty chest congestion. Ugh. The cheating was certainly not worth it.

Then today, I’m having coffee with a friend and BAM! I started having an attack of vertigo. It was so weird, y’all, I mean I have experienced dizziness but this was so much more. I mean, everything around me seemed to be literally turning. And it lasted for a good two minutes before it calmed down. The problem was that the feeling never really went entirely away, even long after my friend had left. I texted another friend to see if what I was experiencing was normal, and if I should go the urgent care or something. I was still feeling super dizzy and I was having some numbness in my left arm. But as I was texting with her I realized that yes, I probably should go. So I called my husband to come get me. My knight in shining armor dropped everything and came as quick as he could. In the meantime my friend came over to check on me and keep an eye on my kids while my husband and I were at the urgent care.

Thankfully, all my vitals and an EKG were normal. The doctor explained that it was most likely inflammation from my recent chest cold that got transferred and consequently trapped in my ear drum, and that it should clear up if I just give it time. In the meantime he gave me an anti-nausea medication to take in case the dizziness is really bothering me or making me feel unsafe. The medicine has helped tremendously.

I was just so ecstatic that I wasn’t having a heart attack and that I didn’t end up in the hospital because I have a family reunion to go to this weekend that I am SUPER STOKED about. Because I have an amazing family full of aunts and uncles and cousins and cousins-plus whom I never get to see anymore. I was so afraid that my stupid health issues were going to ruin that, so I’m just happy. Happy, happy, happy.

I did tell my husband – who knows how hard I try to be low maintenance, and loves me despite my utter failure at it – that I’m ready to get back to the “in health” part of our marriage vows. Seriously.

My dumb butt

A couple weeks ago I went to see an orthopedic doctor for some knee and hip pain I had been having. This pain started in the very first part of May and persisted week after week. I had been trying to ignore it at first, but it just wasn’t getting better, and I was starting to worry that something serious might be going on.

The good news is, nothing serious is going on. Though the pain has since subsided considerably (probably because I’ve cut back on my running), the doctor and therapist I’ve met with both agree there is still a serious issue that needs to be addressed.¬†The ortho doctor told me I have a dumb butt. Seriously. But I guess it’s a real thing, only it has a much more technical name. According to Total Health Systems, “This is a condition called Gluteus Medius Tendinosis and basically when the muscle becomes inflamed it causes serious hip pain, which can lead to lower back and hip pain, tight IT bands, knee pain and injury.” So my butt muscles aren’t firing, and that makes other muscles work harder, and basically throws everything off. Oh, and my feet are also somewhat involved in this hot mess. Something about my arches needing support. They keep taping up my right foot when I go in. I’m not sure what it does, but they tell me my feet angle in a little bit and they may need to recommend some inserts to put in my shoes.

I’ve read that this dumb butt thing happens most commonly in runners, so this might be a result of my running, but the therapist seems to think it’s more a result of years of living with MS. Some muscles have just become weak, and others have had to work overtime to compensate, so I guess it makes sense that all this is happening. I’m excited about the treatment plan they have set for me, and really hope these exercises I’m doing result in a smarter butt.¬†Hopefully we can get the issue under control soon so I can get back to regular running again.